ute lunchtime webinar will feature our newest Advisory Group member Dr Kirsten Harley. Kirsten lives with motor neurone disease (MND) and relies on technology to speak and breathe, with a team of trained carers providing round-the-clock care.
Kirsten has shared why she joined the Your Story Advisory Group, and reflected on her experience telling her story to the Royal Commission at a public hearing about COVID-19.
She will be joined by Ruth Pilkinton, a senior lawyer who balances leading Legal Aid NSW’s Family Law Early Intervention Unit with caring for two family members with disability – her adult son Daniel, who lives with autism and intellectual disability and is non-verbal, and her husband Paul, who has a rare form of MND called Primary Lateral Sclerosis and uses a powered wheelchair and an iPad to communicate.
The webinar will be facilitated by Your Story lawyer and Chair of the Legal Aid NSW Disability Network, Rania Saab, who also has lived experience, with hearing loss and three young children, two of whom have a disability.
