Next week it will be one year since our 14-year-old son Ezra was discharged from hospital with a life-changing disability. A rare nerve condition triggered by Hodgkin’s lymphoma has paralysed his arms and legs. He has had to become an advocate for himself, and we have adjusted as a family to a new way of living. Much of the shock we’ve experienced over the past year has had nothing to do with Ezra’s disability, and everything to do with his treatment from the world around him.